Noticias y Eventos

Congreso de ADF en Burgos: 15-17 de noviembre de 2019

Los días 28, 29 y 30 de mayo de 2019 se ha desarrollado en Florencia el IV Congreso del Consorcio Internacional de DF/MAS. La ADF ha estado presente. Este era el programa:

4th Meeting of the International FD/MAS Consortium Florence, May 28-29, 2019

Organizer: Dr. Maria Luisa Brandi

DAY 1,

Tuesday May 28

8.00 Registration

8.30 Opening and Welcome

FIRST SESSION: BASIC RESEARCH Chairmen: Mike Collins and Luca Sangiorgi

8.45 GNAS Spectrum of Disorders Giovanna Mantovani, University of Milan, I

9.05 The Role of Stem Cells in FD Initiation and Maintenance Mara Riminucci, University of Rome “La Sapienza”,

9.25 Mouse models of FD/MAS Yingzi Yang, Harvard Dental School, Boston, MA, USA

9.45 Human cellular models of FD/MAS Ed Hsiao, UCSF, San Francisco, USA

10.05 Gene Mutation Analysis in FD/MAS Luisa de Santis, University of Turin, I

10.25 Future Agenda of Basic Research Panel Discussion

10.45 Coffee Break

SECOND SESSION: EXTRASKELETAL DISEASE Chairmen: Daniele Tessaris and Neeven Hamdy

11.00 Endocrine Disease in MAS Daniele Tessaris University of Turin, I

11.20 Gonadal disease in MAS M Wasniewska , University of Messina, I

11.40 Use of Biological Markers in FD/MAS Roland Chapurlat, University of Lyon, F

12.00 Cancer Risk in FD/MAS Natasha M Appelman-Dikstra Leiden University, NL

12.20 MAS – Associated Gastrointestinal Pathologies Michael Collins, NIH NIDCR Bethesda, USA

12.40 Lunch and Poster Session

THIRD SESSION: INSIGHT IN DIAGNOSIS Chairmen: Natasha M Appelman-Dikstra and Laura Masi

14.00 Fibrous Dysplasia Imitating Malignancy Rodolfo Capanna, University of Pisa, I

14.20 Use of Biological Markers in FD/MAS Pablo Florenzano, Catholic University of Santiago, Chile

14.40 Imaging modalities in FD/MAS Michael Collins, NIH NIDCR Bethesda, USA

15.00 Coffee Break

FOURTH SESSION: SURGICAL THERAPY Chairmen: Giovanni Beltrami and Lorenzo Genitori

15.15 Craniofacial Fibrous Dysplasia: The Point of View of the Neurosurgeon Lorenzo Genitori, AOU Meyer, Florence, I

15.35 Craniofacial Fibrous Dysplasia: The Point of View of the Maxillofacial Surgeon Giuseppe Spinelli, AOU of Careggi, Florence

15.55 Scoliosis in FD/MAS Robert Stanton, Nemours Ch, Orlando, USA

16.15 The Expert Orthopaedic Surgeon Giovanni Beltrami, AOU of Careggi, Florence

10.10 Dinner

Day 2,

Wednesday May 29

FIFTH SESSION: THE PAIN ISSUE Chairmen: Maria Luisa Brandi and Anne Marie Heegaard

8.30 Pathogenetic Mechanisms of Bone Pain Diego Fornasari, University of Milan, I

8.50 Clinical Evaluation of Bone Pain Renato Vellucci, AOU Careggi, Florence, I

9.10 What Are We Doing to Answer Patients’ Needs? Roland Chapurlat, University of Lyon, F

9.30 Assessing bone pain in fibrous dysplasia Anne Marie Heegaard, Copenhagen University, DA

9.50 Designing Analgesic Trials Panel Discussion

10.10 Coffee break

SIXTH SESSION: PHARMACOLOGICAL THERAPY Chairmen: Alison Boyce and Deanna Portero

10.30 FD/MAS: Treating Children and Adolescents with Antiresorptive medications Alison Boyce, NIH, Bethesda, USA

10.50 Results from Recent Clinical Trials Roland Chapurlat, University of Lyon, F

11.10 Osteoporosis Treatment in Special Patient Populations Laura Masi, AOU of Careggi, Florence, I

11.30 Denosumab Trials Neveen Hamdy, Leiden University, NL

11.50 Prospects for the Future Panel Discussion

SEVENTH SESSION: QUALITY OF LIFE ANALYSIS Chairmen: Kassim Javaid and Pablo Florenzano

12.30 Bond as platform for Rare Bone Disorders Luca Sangiorgi, Bologna, I

12.50 Driving improvement in clinical centres – effectiveness, efficiency and patient experience – designing a global audit of clinical services based on the global pathway Valter Dal Pos, Torino, I

13.10 Bringing together research across borders: natural history of disease database opportunities in the ERN and further afield Michael Collins, NIH NIDCR Bethesda, USA

13.30 Lunch and Poster Session

14.00-19.00 International Patient Afternoon